First Treatment, check.
Carrot Juice, check.
Lunch, check.
........ Appointment with the Professor regarding Darcy.
Agenda:
Review of initial photographs
Woods lamp review
Further photographs
Diet
H2O2
Handheld lamp
Mottling
Knees and teeth
I took photo's of the initial photo's. Angela and the Prof only had hard copies. I will try and get these from my phone on to the internet.
Woods Lamp showed repigmentation around the final bits of her eyelids and under her eyes. Darcy's eyelashes are so long (such a curse) that the Professor advised trimming her eyelashes so that the sun can get to this area. There is no way on God's beautiful Earth that Darcy will let me do this. I think this is the battle that she will win. Enough said.
Woods lamp showed nothing on her stubborn armpit. Zip. Disappointing, but still we have hope with the lamp at home. What we can be grateful for is that it also has not got bigger which is a major challenge for many of the patients here. For them it is not about re-pigmenting, but about stopping the spread over their whole body.
Woods Lamp did show some spots on her knee. Hooray. This is a bad dot and one that is difficult to cover. Fingers crossed this one goes full throttle and re-pigments. Good News. I am very happy with the results.
Angela (Prof's offsider and work partners for more than 20 years) then took further photos f Darcy while Prof and I chatted.
No changes to the diet except no tumeric and no chilli. We knew this.
Higher levels of H2O2 are also associated with Arthritis. Prof thinks we should first get Darcy Proper orthotics for her shoes as she antenates on the insdie of her foot to a high degree (we have already started this process). Also, no Celebrex as prescribed. Manage it with panadol and if really bad ibuprofen. Prof says she will grow out it. Crossing more fingers.
There is no need for us to get the handheld lamp. Our existing lamp is good for the job.
Mottling - Darcy's re-pigmentation on her face is not discernible. You cannot tell where her pigment has come back. On her neck however, the patches remain mottled. We spoke at length about this and Prof says that this is common. The face comes back awesomely and the neck remains patchy.
We now have another cream. #7 cream. Further info on this later.
Will have to apply once per day at night before bed just on her neck. It might help even this mottling.
Knees - addressed above.
Teeth - Darcy has Fluorosis (also called fluoridosis) where her body concentrates the fluoride into spots. Nothing to worry about. Keep feeding her fluoride-free toothpaste.
So we left, the Prof then writes me a big long love letter advising me of the treatment at home.
Feeling very positive. Once again, what was basically a leap of faith has hopefully turned out to be helping our beautiful little possum.
Lovely skype with Oma, Poppy & Harper, as well as with Emily and MDG.
AsI type, we only have 2 treatments left. Yipppeeeeeee!
This afternoon.... in the Dead Sea for the 3rd last time, we said goodbye to Yanna's tooth and made a wish. So far Emily has thrown a tooth in Lake Lucerne Switzerland, Darcy threw one in Kingston Wharf, Norfolk Island and now Yanna in Dead Sea. I wonder where for Harper.............................
I have an excellent orthotic man who specialises in kids if you need the number. David at strathfield podiatry x
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