I have prepared a whole bunch of info for you below with some ins and outs of the treatment so far.
Love to you all. Lindsey & Yanna & Darcy Jane.
23/4
145pm. First meeting with the Prof. She was kind and welcoming and seemed genuinely happy to see Darcy and shared the success of her treatment. She showed black white photos of Darcy at her first treatment that I had not seen before. Horrific. I started crying. You forget about how chronic it was.
She looked at Darcy again under the woods lamp and was thrilled that no further Vitiligo appears deep in the skin layers. Darcy was naked for this bit.
Discussed the use of Zinc to protect sensitive areas whilst you are swimming in the DS. Bottoms and front bottoms, cuts and sore, lips in some cases. Gave me a little pot of zinc. About the size of an old film canister - slightly smaller.
Went through all the blood test results that we took with us courtesy of our GP in Sydney. Commented on Darcy's eosinophils (sp?) and they are an indicator for eczema. Darcy has extensive eczema under one arm and between her knees. Prof put some cortisone cream on them and discussed how the DS will really sting this but it will also clear it up in 2 days.
I spoke to the Prof about Darcy's knees. She said that she did not believe that Darcy has childhood arthritis and also said that any conditions that she has in her knees that the DS will cure it all ... her exact words.... "Let us see how it goes". Prof is not doubting the doctors and methods of treatment, she is doubting the diagnosis. It is linked to her Vitiligo. Perhaps there is another type of arthritis that is specific to auto immune spectrum. I would not be surprised if this place cured everything. It has health and well being written all over it.
She took all the results and she will go through them in more detail.
Prof spoke of how "the climate" is so different here. The very low UV sunshine (filtered because below sea level and salts in atmosphere), the minerals in the air and water. All this is so helpful for the body. Prof believes that many ailments can be treated here.
You can see this salty haze over the sea and you see the salts in the water, the water, whilst crystal clear, has like a emulsified oil slick running through it.
Have not gone near the DS mud yet... but i'll get to that later. Apparently it is like the DS concentrated.
Said start treatment today at 330pm - this is the "afternoon session" that all the Vit's do. All the families get in to. All up about 50 people in the water. There are heaps of seats along the shore. One group bought a horn like at a Sth American football game and whenever someone new turned up... they belted out a tune and everybody cheered and sang. It was very welcoming and fun. I think they were Germans. A lot of German people here.
TREATMENT - 330pm 23/4. 15min bobbing in DS in swimers. Rinse and wash off*. Apply cream and 5 mins on back, 5 mins on front in full sun. Arms above head. Then 30 mins (total - do various positions to make up the 30 mins) in shade. Note: It was a very hot afternoon and we are at the beginning of the treatment and Darcy's skin is not yet acclimated to the sun. Also note that the Prof stands at the top of the stairs and greets you individually and asks how you are feeling, looks at you and then says an individual treatment just for you.
* Darcy was fine in the DS for the first 10 minutes, but the last 5 were excruciatingly painful for her. Her eczema was so flared up - like red welts. she was crying and was trying to be brave. It is mega itchy and was stinging her.
The professor was very caring and kind and helped her wash off in the shower - even booted some guy out so she could use the shower (outdoor, in swimsuits). She therefore advised a less brutal sun regime (doing the solar part in the shade today). Once in the soalrium, we had another long cool shower (outdoor showers in the sun) naked. There is 4 solariums. Men, Women, Boys and Girls. We are in the girls one. Today there were 7 girls (aged 11, 10, 10, 10, 7, 7, 7), their mums and two had sisters. All patients completely naked during this part. After the soothing shower, Darcy still in a lot of pain. Her eczema was like massive red welts and she also had a rash like mottling everywhere. We applied her cream and she lay in the sun for the 5 mins each side. I think the sun did not help that is why the Prof only said 5 mins. Once in the shade (after 10 mins) Darcy's skin had calmed down a bit and the pain had subsided. She had by this time also stopped crying. Pretty traumatic experience. All the other mums explained that they had gone through a similar thing. One 10 year old chatted to Darcy about it and said that she had had the same thing (eczema and Vitilgo are good mates apparently). Her rash has now disappeared. This girl had 80% pigment loss and has been doing Profs treatment for 5 years. I would say she now has 30-40% pigment loss. Absolutely lovely girl. Very clever.
Darcy liked hearing this story and ask that it be told again. I have explained to Darcy that her skin will get used to the salt and sun and that after a few days, it will not be so painful. The next days will be a challenge.
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